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“Sleep Disorders in Ehlers-Danlos and Related Syndromes: A Panoply of Paradoxes” – Alan Pocinki, MD

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Help share more videos like this by donating to Bobby Jones CSF:\nDr. Alan Pocinki discusses how poor sleep and sleep disorders can have a negative effect on patients who struggle with chronic illness.\n\nPoor sleep can fuel the cycle of chronic pain, leading to even more disordered sleep and worse pain or symptoms. Watch to learn more about how this can occur, specifically, in patients with Ehlers-Danlos syndrome (EDS), Chiari malformation, syringomyelia and other chronic illnesses.\n\nThis lecture was given at the February 2019 Chapter meeting in Charleston, South Carolina. (2019)\n\nFor more information and educational materials, visit our website:\nTo learn more about Bobby Jones CSF, visit our new website:\n\nSee also:\nFacebook:\nTwitter:\nInstagram: http://instagram/bobbyjonescsf

Farasat Ali Dogar écrit: nice video informative,good effort,OhWaitWhat’sThis écrit: I have vascular ehler danlos. I have hypoventilation with retained co2. My pulmonary sleep Dr. sees this as normal. I wake up gasping with bad morning headaches and overactive sympathetic nervous system symptoms. I asked for a bipap but no ones listening. What is your recommendation for next steps I can take.

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